It hit me hard and I felt devastated when I understood what that would mean to my life. At that time, the prognoses were not as optimistic as they are now, with all the new medications. I would end up in a wheel chair, at best.
I was determined not to let that happen and struggled my way through excruciating pain. Yeah, sometimes it pays off to be hard headed. It was not easy though and if I had to do it all over again, I would have incorporated what I am about to advise you to do: talk!
Talk as much as you can to anyone who is willing to listen. Voice your fears, concerns and feelings. Don't bottle it up: open up! It will make you feel better, give others more understanding and allows for positive feedback.
No one has to carry this burden by themselves, it will eat you from the inside out and there is no need for that. Life presents enough problems without you adding on to it. God knew that too well and provided for us, so we would not have to go through it alone.
Cast your burden on the LORD, And He shall sustain you; He shall never permit the righteous to be moved.